One year ago today Kim (with Rosie growing inside), my mom and I went into the doctor's office to hear the results of my biopsy and diagnosis. Other family was there and waiting to hear the results. A lot more family and friends were waiting anxiously for an email or phone call. We already had a ton of support. The doctors said what I already knew, that I had brain cancer. They also said there was a clear plan to treat it: about a year of treatment. That circle around the sun has passed and the light at the end of the treatment tunnel is in sight. So far the results are looking good.
I will never forget meeting with the doctors who told me I have cancer, but what I will remember most vividly is our response to the diagnosis. We made the conscious decision to live on our terms. We had our first child on the way and the only way we wanted to welcome her to earth was to parents and family full of love. Even more I realized this tumor and disease is part of me, likely forever. I was not going to fight part of myself. There are many aspects of the disease and treatment that have temporarily changed my lifestyle. But it has been important for me to maintain the essence of who I am while dealing with cancer. I believe I can love the cancer as it dies and passes on. We intentionally set the message of love and positivity and asked our family and friends to support us with that energy, while leaving fear and hate at the door. The response was and continues to be incredible beyond words. Thank you.
I reflect on the past year and I am filled with gratitude. For my most amazing and strong wife. For the gift of our incredible daughter, Rosemary. For family and friends. For everyone, including people we have not met, who have sent good energy and thoughts our way. Lastly, I am even grateful to my tumor and disease itself which has taught me about life and love in profound ways.
Friday, May 27, 2016
Friday, May 13, 2016
Half-Birthday and Cancer Update
Yesterday was 6 months since Rosie was born. The mental and physical development is amazing to witness. Day-to-day and week-to-week we are watching Rosie change. Of course there are some moments when she is not happy and we wish she could just talk and tell us what she needs. We don't know any different, but she seems to be a very happy baby. We are so thankful for her to be in our family.
Trying to fly! |
There is also an update on my health after a MRI that I had this past Monday. The MRI shows continued stabilization and even shrinking of the tumor! The previous MRI in February also showed an improvement in the tumor, but we were being more quiet about it to stay the course. MRIs before February showed stability, but not improvement of the tumor. So the news from the last two MRIs is fantastic. We are still staying away from overconfidence. But so far the treatment is going as planned. From our perspective it is a huge psychological boost to see improvement after slogging through about a year of treatment so far.
Treatment has been a grind at times, but having a positive attitude and the incredible love and support from all of you has helped immensely. I am proud that we have kept positive and continued to deal with this obstacle through love and living our lives in the fullest way. Cancer has not changed me. It has given me, Kim and hopefully Rosie a different perspective on life and makes us stronger as individuals and as a family.
I see the light at the end of the treatment tunnel. I have now completed 5 of the 6 planned chemo cycles. The next step is to recover from Cycle 5. Then I will complete Cycle 6, probably in June/July. After that it should be monitoring and I will be working hard to fully recover and strengthen my body. That is the plan moving forward. It is the best outcome we could have asked for a year ago. We also know to expect the unexpected and we will deal with whatever lies ahead.
Photo by: Renick Woods |
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